Book:

Try Carrying This Around

 

scroll to the right to read the book

  Concept: The book is a brief exploration into some of the difficulties of living with disability in the family through the metaphor of the big, red ball.

  General Description:

9 pages, including cover

7.5 inches x 10.5 inches

hard bound, red cover

edition of 10
  

 

This big, red ball entered my family’s life all at once.
We used to be just like any other family, but now everything we do
is influenced by the presence of this big, red ball.
When we walk somewhere, one of us needs to walk with the big, red ball.
        

Sometimes we all get interested in something and we forget to take care of the big, red ball. When we remember that it has been sitting off by itself, we all feel terrible.
        

In public places, it can be difficult to manuever the big, red ball. Seats aren't always designed for holding big, red balls.

 

        

At a meal, the big, red ball can’t take care of itself. It is a bit of a trick to take care of one’s self and the big, red ball at the same time. When I’m very hungry, I want to feed myself, but I feel guilty if I don’t take care of the big, red ball first.
        

Wherever we go, people can’t seem to help but stare at the big, red ball.
        

Sometimes the ball is awkward and hard to manage and then I feel really embarassed by all the staring eyes. If I look back at people they usually look away quickly. Then I feel bad for being ashamed of the big, red ball.

 

        

It can really be a chore to have the big, red ball in my life. When I am with the big, red ball I need to be constantly aware of its needs. Even when the big, red ball isn’t with me, it is always on my mind.